Carers of someone with dementia are invited to take part in this creative research study. This study involves working with carers to co-design a resource that aims to provide a more balanced view of the experience of caring. The resource will be suitable for the general public and go some way towards countering overly negative portrayals of caring for someone living with dementia.
Participants will be asked to attend up to three workshops to help co-design a multimedia resource that communicates creative caring strategies. You’ll be asked to share the aspects of caring that you find rewarding, as well as strategies that you have found helpful in supporting someone living with dementia.
For further information or to participate, please contact Kirsten Moore via email at email@example.com, or by phone on (03) 8387 2596. This project has been approved by St Vincent’s Hospital Melbourne Human Research Ethics Committee (HREC Reference Number: LRR 203/21).
Researchers at the National Ageing Research Institute are working with the National Mental Health Commission to understand the key issues for older adults with mental illness and their carers.
Older adults who live in the community or in residential aged care as well as family or friend carers of older people living with mental illness are invited to participate in a focus group discussion.
Researchers are keen to hear your unique insights about the mental health and wellbeing of older people, and how this can be better supported. The focus group discussion will take approximately 1.5hrs and will be conducted at a location convenient to participants or online subject to COVID-19 restrictions.
To participate, you must be:
- Aged 65 years + or aged 50 years+ if you are from Aboriginal and Torres Strait Islander background, live with HIV/AIDS or have an experience of chronic homelessness;
- An adult (18 years+) family or friend carer of an older person living with mental illness; or
- An adult (18 years+) family or friend carer of an older person living with mental illness.
Understanding the Experiences of Young People with Disability who Behave in Ways that Make Others Feel Frightened or Afraid
The University of Melbourne is seeking family members and carers to take part in an interview to talk about lived experiences of disability and trauma. The aim of the study is to build a better understanding of young people with disability and families living with a young person who behaves in ways that make others in the home feel afraid or frightened. This may include: damaging items belonging to family members or around the home, yelling and screaming, hitting or punching, throwing objects or forcing family members or cares out the home. Participants will be offered compensation for their time in the form of a gift card.
The National Ageing Research Institute (NARI) is currently running a study on how COVID-19 and lockdowns have affected quality of care in residential aged care facilities. NARI is looking for residents in aged care facilities, and family members or carers of residents in aged care to share their story and experiences from the past 18 months. Findings from this study will help with the development and implementation of quality measures for residential aged care services. If you’re interested in participating in a research interview, contact Stephanie by phone on (03) 8387 2512 or email firstname.lastname@example.org
The Australian Government is proposing changes to the legislation underpinning the National Disability Insurance Scheme (NDIS) to make processes easier and better for NDIS participants. These changes are directly informed by the outcomes of the 2019 independent review of the NDIS legislation, the ‘Tune Review’.
People with disability, their family and carers are invited to take part in a consultation over a four-week period. It is now open and will close at midnight on 7 October 2021.
As this consultation is on the proposed legislation, the questions in the submissions form are very specific and act as a guide, but broader feedback is also welcomed. The questions ask for views on whether the legislation aligns correctly with the 2019 NDIS Act review recommendations, if they clearly reflect the Government’s intent, and if there are unintended consequences to any of the legislative changes.
Aged Care Study: The Catalyst Report
Catalyst Research is launching its inaugural Aged Care industry study in partnership with Council on the Ageing (COTA) Australia. This is a national study to build an understanding of what people are looking for when choosing a nursing home.
The study will gather feedback from over 5,000 Australians – those currently living in residential aged care; their family members, friends and carers; and people considering a nursing home in the future. The findings will be used to inform nursing home providers of consumer choice factors, information sources, and the hopes and fears of residents. It is a chance for the general public to help shape the future of aged care.
You can find the survey here.
The Government is seeking young people who are keen to make their voice heard on issues that matter to young Victorians. The Victorian Youth Congress is the Minister for Youth’s advisory group of young people who work with government to put young people’s ideas and experiences at the centre of government decision-making.
The 2022 Victorian Youth Congress provides an exciting opportunity to get involved in the implementation of Victoria’s new youth strategy, due to be released later in 2021.
Young people from diverse backgrounds and ages, and from across both regional Victoria and Melbourne, are encouraged to apply to be part of the 2022 Victorian Youth Congress and represent their communities. Applicants do not need previous experience working with government. Members of the Victorian Youth Congress are provided with opportunities and supports to develop leadership and teamwork skills and try a range of new experiences. Applications are open from 9 August to 13 September. To apply or for more information, click here.
The Department of Health invites providers, consumers, sector representatives and other key stakeholders working in the aged care sector to complete an online survey about the Aged Care Quality Standards. In addition, individuals can nominate to participate in an online focus group on the Quality Standards. The survey forms part of a broader evaluation of the Quality Standards.
The survey is open until midnight on 3 September 2021 and takes 15 minutes to complete.
Find more details about the survey.
Find more details about the focus groups.
Researchers at Curtin University and National Ageing Research Institute are seeking people from Vietnamese and Spanish speaking backgrounds aged 18 years or over to evaluate three short films aimed at raising dementia awareness online. They need your input to ensure the films are relevant and meet the needs of the community.
The evaluation should take no more than 30 minutes and participants will go in the draw to win a $50 gift card.
To view the films, click here. To complete the evaluation, please click on the relevant link below:
Study: Monetary Value of Providing Care to Someone Living with Dementia
Deakin University, in collaboration with Carers Victoria, are conducting a study that aims to estimate the monetary value of the time spent providing informal care to a person with dementia. All carers who provide regular, unpaid support to a person living with dementia are invited to complete an online survey which asks questions about your opinion of different caring situations. Participants will receive a Coles gift voucher for their time.
To complete the survey click here.
Monash University is seeking carers of older adults living in the community to take part in an interview for a research project. The research project aims to identify carers’ experiences and needs in supporting older adults who are discharged from hospital to home. The research interview will take place by telephone and it will take about one hour. To take part, carers will:
- Be supporting an older adult living in the community with chronic health difficulties, and;
- Have experience with discharge from hospital to home following admission for a physical health problem of the older adult that they support.
All carers are very welcome including those from diverse locations such as rural and regional areas, diverse cultural backgrounds, and diverse sexual orientation. Carers who have recently supported an older adult (within the past 12 months) are also eligible.
Please contact Jacqui Allen on 0427 940 794 or by email Jacqui.email@example.com for more information and details about participating.
Carers Victoria and the Monash University Rehabilitation, Ageing and Independent Living (RAIL) research centre’s “Who cares for the carers” Living Labs Project is conducting a project on the health and wellbeing of older carers.
The study will integrate data from multiple sources, including the Mornington Peninsula, wider Victoria, Western AUSTRALIA and a unique Carers’ Clinic in Brazil, to inform development of a novel carers’ health service model suitable for the Australian context.
We are seeking carers aged 50 and above who care for older people (aged 65 years or above) to complete a survey about your needs relating to health, wellbeing, health promotion and support services. The survey will take approximately 30 minutes to complete. You can complete it here.
For further information or to receive a paper-based survey please contact Dr Angel Lee (project manager) on (03) 9904 4662 or email firstname.lastname@example.org
Vote for Carers Victoria
Carers Victoria has been shortlisted as one of six charities to potentially receive a share of profits from the Live Your Potential NDIS Expo 2021. Of the six, three will be chosen.
The Expo is a free day out for participants, carers and family to meet NDIS providers and join in some fun inclusive activities. Organisers of the Expo will donate all profits to charity organisations doing amazing work within the NDIS sector.
Click here to cast your vote by Tuesday 31 August.
Deakin University and the University of Copenhagen are conducting a study on the needs of carers supporting someone who has had a stroke. The data will be collected to develop strategies that researchers, medical professionals and engineers can use to develop the best methods to support carers in this role.
Carers over the age of 18 who are caring for someone living with stroke are asked to complete an online survey. You will receive a $50 voucher for your time.
The University of Southern Queensland (USQ) is conducting a study investigating the values associated with caregiving for older family members. If you are caring for a family member who is older, the researchers would like to hear from you.
Your participation will involve an interview over Zoom that will take approximately 50 minutes. The interview will take place at a time and date that is convenient to you.
For further information please contact Siobhan via email Siobhan.Melvin@usq.edu.au
Carer Wellbeing and Connection - Now Taking Expressions of Interest
We know that people who provide care for a loved one often experience loneliness and can feel isolated. COVID-19 restrictions have only made it more complicated and difficult. If this sounds familiar, the Carer Wellbeing and Connection program may be right for you. We are now taking registrations for June 2021.
Mind the Step – Dates for May Now Available
Are you caring for a friend or family member?
Are you feeling uncertain, stressed or anxious?
Do you want to feel more connected?
Carers Victoria is delivering Mind the Step, a FREE four-week online program for carers who feel they would benefit from building their personal resilience and connecting with others in similar situations. The program is facilitated by qualified counsellors via Zoom for 90 minutes each week to support carers in Western Victoria. Participant numbers are kept small to provide a safe and supportive environment.
If you’d like to enrich your mental health and wellbeing, build awareness or resources and support services and feel more empowered as a carer, register your interest for Mind the Step. The program is for anyone living in Western Victoria who is in a caring role.
We are now taking expressions of interest for May intake. To learn more about the program click here.
State Disability Plan
The State Disability Plan sets out the Government's priorities and actions over the next five years to create a more inclusive and accessible Victoria. Consultation for the next plan (2021-25) has begun again after being paused due to the COVID-19 pandemic.
Forums will cover important issues impacting on the lives of people with disability. The Minister for Disability, Ageing and Carers, Luke Donnellan will attend the first session on March 31 alongside members of the Victorian Disability Advisory Council. There will also be a dedicated forum for people from rural and regional communities.
The Andrews Labor Government is also currently reviewing the Disability Act (2006). Feedback is wanted from the community to make sure the law continues to protect the rights of people with disability, supports their needs and aspirations, promotes and protects rights, and advances inclusion and participation.
Carers Victoria is a member of the Disability Act Review Advisory Group and encourages all carers to contribute their own ideas about improving the Disability Act and/or the State Disability Plan to better recognise and support carers and care relationships.
Carers Victoria’s own submission made the primary recommendation that any State Disability Plan should recognise that over 30 % of carers have a disability themselves and therefore, more alignment between the State Disability Plan and the Victorian Carer Strategy is required. You can read the submission here.
For more information on these forums or to register to attend, click here or call the Office for Disability on 1300 880 043.
The ATICA Project team at Monash University are investigating the efficacy of a game-based cognitive training program in improving attention in children aged 5-8 years who have a diagnosis of Attention-Deficit/Hyperactivity Disorder (ADHD). Children with ADHD will trial the computerised cognitive training program in their home. Families will be provided a tablet containing the cognitive training program for the duration of the study.
Participants are required to attend in-person assessment session, pre-training, post-training and for a 6-month follow up. Training at home will involve 5 x 20-minute training sessions weekly for five weeks.
Participants will be given a report of their abilities on each of the assessment measures including a cognitive assessment, and receive gift vouchers for their time.
For further information about this research please contact Tori Gaunson or Meg Bennett on (03) 9905 5507 or Med.email@example.com
The Brotherhood of St. Laurence (BSL) NDIS is inviting people with disability, family members and carers to join their fortnightly Facebook Q&A sessions.
Every Thursday fortnight at 2pm you will have the opportunity to ask your questions direct to a Local Area Coordinator (LAC) or Early Childhood Early Intervention (ECEI) Coordinator from BSL who will be online and ready to respond.
Sessions include a general NDIS Q&A, as well as dedicated ECEI sessions for individuals and families who have children aged 0–6 years with delays in their development or a disability.
Whether you’re new to the Scheme, have an NDIS plan, or want to know more about BSL NDIS Services, the Facebook Q&A is the place to get answers to your questions.
Thursday 11 March (ECEI session)
Thursday 25 March
To find out more click here.
The Victorian Government is developing a 10-year strategy for social and affordable housing in Victoria. Carers are encouraged to share their views about affordable social housing for themselves, as well as for the people they care for.
The Government is inviting you or your organisation to have your say by:
- Responding to an online survey; or
- Making a written submission.
Homes Victoria will also be speaking with social housing residents and sector partners during this consultation process.
To share your experience, visit the Engage Victoria website.
Monash University and the Melbourne Ageing Research Collaboration are doing a study on the impact of visitor restrictions to residential aged care homes during the COVID-19 pandemic.
To be eligible to participate in this study, you must be a family member or friend of someone in residential aged care and were affected by visitor restrictions during the Pandemic.
Outcomes for Children and Young People Using Disability Services
Researchers at Scope are inviting carers of children and young people (0-14 years) with disability to complete an online survey that explores the impact of disability services or supports. The survey takes about 10 minutes and is anonymous and confidential.
Ensuring carers are heard in this research is very important to the researchers. The survey is available online here.
To find out more phone Caroline Hart on 0437 840 684 or email CHart@scopeaust.org.au
The Victorian Government will introduce a duty of candour law in 2021 and seeks your comments on related reforms.
The reforms have the potential to impact everyone who interacts with health services, consumers and clinicians. So, it is important that everyone has the opportunity to contribute meaningfully to their detailed design.
Under the duty of candour law, hospitals will have an obligation to:
- Apologise to any person seriously harmed while receiving care;
- Explain what went wrong;
- Describe what action will be taken and what improvements will be put in place.
Saying sorry will not be an admission of fault relevant to court determinations.
The law will be the first of its kind in Australia.
The Victorian Government is seeking your feedback to Victorian candour and open disclosure guidelines and proposed model for clinical incident review protections. You can provide feedback by:
- Responding to some or all the questions in a survey;
- Uploading a submission document based on the survey questions.
Find out more and have your say here.
The Florey Institute of Neuroscience and Mental Health and Eastern Health are conducting research to better Circadian Rythms and Quality of Sleep in Alzheimer's dementia (AD) and frontotemporal dementia (FTD). People who have a diagnosis of probable AD or FTD and their partners are invited to take part in this study.
Participation for the person with dementia involves an overnight polysomnography (wearing a non-invasive device while sleeping for one night), wearing a smart device on the wrist for a week, provision of urine samples and some cognitive testing. The person with dementia may also provide a small blood sample and / or undertake an MRI if they are comfortable to do so. Participation for the partner involves keeping a sleep diary (5 minutes of writing per day for 7 days) and completion of a few questionnaires.
All travel expenses incurred by participants can be reimbursed by the study.
Please read the participant information sheet and consent form here which provides more detail about participating in the project. Participation is voluntary and does not affect your access to services from Carers Victoria or the Carer Gateway.
If you are interested in taking part or would like more information, please contact Derek English by phone on (03) 9982 2335 or email